everything little thing is gonna be all right

[gfrancie]

My son's preschool teacher has a grandchild with a terminal illness. It is what it is. I believe her grand-daughter was diagnosed when she was a few months old. It is one of those things where most children with this condition might make it to two. Her Granddaughter is nearly two and still here. (she won't likely make it to four) My son's teacher's daughter also has a condition that makes life a bit hard. (lupus!) The teacher was telling me how the other day her daughter said, "yeah. Life is really good. My husband has a job, my health is fairly stable and I had a good chat with the end of life doctor who said that M. won't be in pain when the end comes. I am feeling really good about things."

From a removed perspective the whole situation could be seen as great big pile of sadness. But right there in the storm, things are okay. The family is doing what they can for their baby, enjoying her while they have her and having the perspective of "right now, it's good." Obviously with their life, everything is on different plane of expectations, but it is still a good reminder to take the time to remember some things are pretty good.

Comments

[emily-swank.livejournal.com]

I try to always remember that my children are HEALTHY therefore it doesn't matter that they are HORRIBLE. I forget a lot.

[gfrancie.livejournal.com]

Yeah. I suppose when they are healthy you begin to think, "okay what else can we improve upon here?"
I know I do.

[neptunia67.livejournal.com]

Seeing or hearing about people in this situation really puts things into perspective for me.

[gfrancie.livejournal.com]

It is so interesting hearing the teacher talk about it. It is just very matter of fact and she still has funny stories of things M. has said/done. She is fortunate that she gets to live next door to her daughter and grandchild so she can fully enjoy them.

[ms-pooka.livejournal.com]

uuuggghhh.

[gfrancie.livejournal.com]

Yeah.

This is my message to you hoo hoo.

[sahara-harp.livejournal.com]

It really is gonna be all right. So much of what I see in the service I am doing lately tells me this.

Re: This is my message to you hoo hoo.

[gfrancie.livejournal.com]

Yeah. I just wish I could completely contain/control my emotions in a nice little box.

[cusackam.livejournal.com]

I am reminded of things like this every time we set foot in Children's Makes me so thankful for healthy children!

[gfrancie.livejournal.com]

That place is amazing but lordy... I am sure the emotional vibes are deeply sad.

[cjhm.livejournal.com]

Thank you for posting this. It gave me a lot of perspective. I often forget that the choice is mine whether the glass is half empty or half full.

[gfrancie.livejournal.com]

and sometimes things do suck horribly but they can be okay too. (helps to have a good bit of support around you)

[k425.livejournal.com]

Thanks for posting this.

[gfrancie.livejournal.com]

Welcome.

[far-gone.livejournal.com]

Did you see the NY Times article a couple of weeks ago about loving a baby that would never grow up? Talk about putting it all in perspective.

[far-gone.livejournal.com]

Notes from a Dragon Mom

http://www.nytimes.com/2011/10/16/opinion/sunday/notes-from-a-dragon-mom.html?_r=2&scp=1&sq=emily%20rapp&st=cse

[gfrancie.livejournal.com]

I did read that. The dragon Mom and this Mom are in the exact same boat. They are compressing a lot of love in a very short time.